Celebrate cerebral palsy and the little triumphs. No, it does not mean everyone is ever happy that he/she, or a loved one, has lasting brain damage. It simply means to be glad for every achievement toward autonomy, no matter how small.
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For example, if you have a kid with Cerebral Palsy (CP), he/she may never walk. However, learning to control an electric wheelchair can provide some independence. It may be the not-so-easy act of buttoning a blouse. Individuals without brain injury take so many for granted. Yet, this seemingly small performance should be considered a large triumph.
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No, it is not fair that you or somebody you love has CP. But, nobody ever said life was fair. It does no good to moan about all the activities that cannot be done. However, it is quite a different matter to celebrate new achievements, no matter of how small.
Helpful devices
As with any other kid, a parent should have the objective to help a child reach his/her full potential in self-care, autonomy, and adaptive skills. Kids without special needs generally reach standardized targets of growth and development in an expected period of time. The big difference between a cerebral palsy child and a “normal kid” is the inability to accomplish expected abilities at the appropriate time-if ever.
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Thankfully, a variety of living aids have been developed to help children and adults with cerebral palsy live as autonomously as possible, under the circumstances. If you or your kid is mildly or moderately affected by CP, autonomy may not be an unreasonable expectation. For example, this small list of living aids and helpful devices may enable you or your loved one to eventually have a home and normal daily independence.
? Bed rails
? Lifting chair
? Bathroom handrails
? Shower chair
? Wheelchair
? Crutches
? Adapted Bikes
? And the list goes on, and on, and on. . .
Have you ever read the phrase: “Necessity is the mother of invention?” In other words, if you cannot do a necessary activity to be more autonomous one way, figure out another way, and use those aids. For example, if you cannot get to the upper kitchen cupboards, you can place pieces of furniture that will store your dishes and food. A movable island can hold tableware and provide a workspace to prepare meals for those who may be confined to a wheelchair. Likewise, dressing aids are accessible to help someone with cerebral palsy be able to get dressed by themselves. And there are special bikes available which increase your mobility and physical shape.
So many devices are now available to help the disabled live by there selves, if at all possible. However, it is a lot easier to start raising a kid with special needs with the end goal of possible autonomous living. If you are always doing things for a kid with special needs, or if you allow others to do things you can be trained to do for yourself, neither is a favour. Even if it takes ten times longer, at first, and is frustratingly hard, the goal of achieving any independence is worth trying. Then, you can celebrate cerebral palsy and the little triumphs.